Barth Syndrome Foundation, Inc. (BSF)

פרופילי מימון

פתוח לחברי סגל הטכניון בלבד. אנא התחבר\י כדי לצפות בפרופילי המימון של הקרן (בפינה הימנית העליונה).

We are the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment and pursuit of a cure for Barth syndrome (BTHS). We started in 2000, after the first international conference held in Baltimore, MD (USA) where families from around the world met to discuss BTHS. As a result, we made a unanimous decision to work together to find a cure for this multi-system disorder. Our Foundation strives to accelerate progress through collaboration between families and scientists.

פרטי קשר:

P.O. Box 618 Larchmont, New York 105

Science & Research
Matthew J. Toth, PhD Science Director Telephone: 732-283-3417 Skype Name: matt_bsf Facsimile: 518-213-4061

 

הקרן אינה קרן תחרותית.
אתר הבית: http://www.barthsyndrome.org/english/view.asp?x=1